
Welcome Letter

Prof. Ayman El-Hattab
MENA Organization for Rare Diseases and UAE Genetic Diseases Association will conductthe MENA Organization for Rare Diseases Annual Meeting 2023 in Dubai from 3 to 5 March2023.
The conference will be the largest event for rare disease in the region and will last for threedays during which more than 100 speakers will deliver the most updated knowledge inpresentations, symposiums, and workshops related to rare diseases in various clinical fieldsincluding cardiology, pulmonary, neurology, oncology, metabolic, endocrine, pediatrics, andgenetics. The conference will also emphasize on research, achievements, and latestadvancements in diagnostics and therapeutics in rare diseases. The meeting will presentawards to the best submitted abstracts, an several other awards.
In addition to healthcare providers, students, and researchers; individuals with rare diseaseand their families will participate by attending presentations, workshops, and groupmeetings. Laboratories, pharmaceutical companies, clinics and hospitals, academic andcommunity institutions, and several authorities and societies focusing on rare diseases will also participate. Our goal is to bring all parties involved in rare diseases in one place toconnect and exchange knowledge under one umbrella aiming to increase awareness,advance research, and provide better care for individuals with rare diseases.
Topics Covered
Rare diseases and the value of inclusion
Rare pediatric diseases
Rare genetic syndromes and family meetings
Stem cell in rare diseases
Keynote presentations in rare diseases
National clinical trial center: advantages and roadmap (closed meeting; by invitation only)
Research in rare diseases
Rare disease symposium for patients and families
Regional efforts and developments in rare diseases
Services for rare diseases
Rare malignancies
Huntington disease symposium
Therapeutic options for rare diseases
Rare brain diseases
Rare heart and lung diseases
Angelman syndrome symposium
Rare metabolic and endocrine diseases
Rare infections and skin diseases
Duchenne muscular dystrophy symposium
Diagnosis of rare diseases
Advancement in rare diseases
Distribution of certificates of appreciation and closing remarks
