2023
2nd MENA Congress for Rare Diseases 2023
109Speakers
107Lectures
15Workshops
21CME credits

Welcome Letter

Ayman El-Hattab

Prof. Ayman El-Hattab

Congress President, MENA Congress for Rare Diseases
Director and Consultant Clinical Genetics, Genetics and Rare Disease Center, Burjeel Medical City
Professor, Department of Medical Sciences, College of Medical and Health Sciences, Khalifa University, Abu Dhabi
Founder and President, MENA Organization for Rare Diseases, UAE

MENA Organization for Rare Diseases and UAE Genetic Diseases Association will conductthe MENA Organization for Rare Diseases Annual Meeting 2023 in Dubai from 3 to 5 March2023.

The conference will be the largest event for rare disease in the region and will last for threedays during which more than 100 speakers will deliver the most updated knowledge inpresentations, symposiums, and workshops related to rare diseases in various clinical fieldsincluding cardiology, pulmonary, neurology, oncology, metabolic, endocrine, pediatrics, andgenetics. The conference will also emphasize on research, achievements, and latestadvancements in diagnostics and therapeutics in rare diseases. The meeting will presentawards to the best submitted abstracts, an several other awards.

In addition to healthcare providers, students, and researchers; individuals with rare diseaseand their families will participate by attending presentations, workshops, and groupmeetings. Laboratories, pharmaceutical companies, clinics and hospitals, academic andcommunity institutions, and several authorities and societies focusing on rare diseases will also participate. Our goal is to bring all parties involved in rare diseases in one place toconnect and exchange knowledge under one umbrella aiming to increase awareness,advance research, and provide better care for individuals with rare diseases.

Topics Covered

Rare diseases and the value of inclusion

Rare pediatric diseases

Rare genetic syndromes and family meetings

Stem cell in rare diseases

Keynote presentations in rare diseases

National clinical trial center: advantages and roadmap (closed meeting; by invitation only)

Research in rare diseases

Rare disease symposium for patients and families

Regional efforts and developments in rare diseases

Services for rare diseases

Rare malignancies

Huntington disease symposium

Therapeutic options for rare diseases

Rare brain diseases

Rare heart and lung diseases

Angelman syndrome symposium

Rare metabolic and endocrine diseases

Rare infections and skin diseases

Duchenne muscular dystrophy symposium

Diagnosis of rare diseases

Advancement in rare diseases

Distribution of certificates of appreciation and closing remarks